Who We Are?

Carter was missing milestones early on at just 3 months. Shortly after his pediatrician referred him for genetic testing, and at 10 months he was diagnosed with CTNNB1 Syndrome. Since then Carter sees multiple specialist and attends weekly speech, occupational, and physical therapies. Now at 4 years old, Carter still has problems sitting on his own, standing, and walking. Carter's limited mobility requires use of a wheelchair, gait trainer, and an AAC Device for communication. He also has AFO's and glasses to help him with his every day task.